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  • #20
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    Another story from the "Whaaaa, Boo-Hoo...Not Fair" crowd.

    Perhaps the best suggestion would be to dump all the paid, do-no-good administrators assistants and apply that money to real research.
  • #82
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    @AntiPorcheria
    Did you just criticize the "Whaaaa, Boo-Hoo...Not Fair" crowd and then go "Whaaaa, Boo-Hoo...Not Fair" because administrators get paid for nothing and this story is from the "Whaaaa, Boo-Hoo...Not Fair" crowd? Why, yes you did, Mr. Crybaby!
  • #89
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    @AntiPorcheria
    "I couldn't follow that logic with a team of tracking hounds and a thermal imaging spectrometer."

    I'd like to say, "I'm not surprised," but that would be my wise-ass talking. I am surprised: It ain't that complicated: you criticized the crybabies and then went on to be one. But, I bet you got it the first time, and that was just your best reply. Your reply was, though, cute. I'll give you that.
  • #91
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    @Raybo Hoo boy...using your logic, anyone who disagrees with someone else's comment becomes a crybaby. Okay then, let's fold this Website up because it has nothing but cry babies.
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  • #3
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    Unfortunately, pharmaceutical companies invest where they can profit and ALS, as an example, is one disease that big pharma does not view as profitable. Pretty sad.
  • #8
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    That's exactly right! And not just ALS. There are so many people out there with illnesses that, while they may not kill directly they do cause other medical conditions that can kill.
  • #19
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    An example of this is the number of pharmaceutical companies that have gotten out of the antibiotic business. No more money to be made, so they just say screw the patients, even though their abandonment of these product lines is killing people.
  • #39
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    Why wouldn't they? Business is not in business for fun, they are doing ALL the work, taking ALL the risk. What are YOU doing for free to cure diseases?
    Show me the novel cure for diseases that was created for free or from a Marxist country.
    The best and brightest want to get PAID, feed their family, save for retirement.
  • #50
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    Society is damn near as guilty as the big pharma companies. When people get sick most of them gobble up those meds in a heartbeat. They do not stop to see if by chance Mother Nature already supplied the cure. They do not petition the FDA to stop approving chemicals in the foods, while ignoring all of the natural additives. Why would they? If the FDA approved natural foods and big pharma was only allowed to create natural cures, the farmers would be rich, but who likes rich farmers?
  • #53
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    You make a very disturbing point considering how many high-priced (up to $350 for ONE pill) heart medications are on the market. Pharmaceuticals are a huge part of the corporate machine making the poor poorer and the rich richer just like right-wingers want it to be and are blinded by the fact it's their own constituents (Republicans in general) that are fueling this monster that's destroying the U.S. (perhaps the whole world) from the inside out.
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  • #12
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    Most people donate to a cause that has had an impact on their own lives. I'm grateful for the exposure given to ALS because a very dear friend of mine died of this absolutely horrible disease. I've never seen anything like it. It's a death sentence--a slow, destructive, break-down until you are completely paralyzed--you can't swallow or speak or move--but your mind is alert. Unlike Alzheimers you know exactly what is happening...and there's nothing you can do about it.
  • #4
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    If I had money, I'd donate it based on the risks and rewards. Heart disease research has been heavily funded since forever, so we've probably passed the point of diminishing returns. Ebola, on the other hand, is a new threat, and horribly threatening, so I'd get in line first for a, uh, Ebola Fruit Bat Throw or something.

    Informative story, well presented.
  • #56
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    Some of that data is incorrect. I recall money being given to Susan Komen for Breast Cancer was re-gifted to Planned Parenthood. We haven't given her a dime since.
  • #61
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    That money was given to Planned Parenthood because they are the largest organization to do mammogram screening for women.
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  • #52
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    Not just "killed", but "affected by". As heart-wrenching as it is to see, say, a child suffering and dying from an insanely rare disease, if I'm going to donate from my limited disposable income, I'd rather donate to help a cause that affects hundreds or thousands or millions of children. More "bang for the buck", as it were.
  • #43
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    I'd love to see the graph that shows how much has been donated and how much actually gets applied to actual research.
  • #9
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    We do need to look into donating more towards heart disease. It's the #1 killer of Americans, mostly caused by obesity and inactivity, and it's driving up our insurance premiums.
  • #60
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    I've been a type 1 diabetic for forty-two of my my forty-nine years.... I weigh 140 pounds, I eat excercise and eat right. When I was a kid, insulin cost my folks about twelve dollars a bottle. My last bottle cost $210.00 ( thanks Obama,... Dumbass)... When I had pre-Obama care insurance, I was on an insulin pump, but when I lost the insurance I lost the ability to pay for the supplies. The pump maker, Medtronic, was not of much help. So now I'm back taking five to six shots a day,....
    My point? Pharmaceutical Companies won't release a cure for something they make so much money from... It wouldn't be fair to the stockholders....
  • #98
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    Your state is resposible for setting up the exchanges and the companies in the exchanges, not Obama (as convenient as it is to blame him). There should be several compaines and several different levels to choose from and, unless you (like us) live in a state that's playing politics and refusing to expand the Medicaid option, individuals and families up to 400% of the poverty level receive graduated tax credits to help pay for your premiums. Americans have always had a disconnect between the actual price of meds and what they pay. That's one reason so many thought the ACA and people not having insurance was no big deal. The real price on meds would give most Americans sticker shock. It's not your $10 co-pay. On many it's several hundred dollars per month. Add a couple of those you need to keep you alive and, even if you work, you're screwed. As to insulin, again don't blame Obama. The price should soon come down, but not wildly. The patent is about to run out on many of the longer acting versions (and some companies are suing to drag it out as long as they can) so they're jacking up the price to make as much as they can as long as they can. Not Obama, just good old fashioned capitalism. Supply and demand, it's just in this case, it's a product you can't do without and they know it. BTW, when I was a kid gas prices were 29¢ a gallon (thanks Ike, Kennedy, Johnson, Nixon, Ford, Carter, Reagan, Bush, Clinton, Bush, Obama).
  • #55
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    I have been a big supporter of MDA ever since I was a child. Thankfully, none of my family have any form of neuromuscular diseases.

    Unfortunately, my mom and I both have type 2 diabetes. She is also a kidney patient and lost her left foot due to diabetes.

    As for me, I'm walking daily, watch my blood sugar intake and if I get any small cuts, I take care of it immediately.
  • #124
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    I'd like to see these diseases ranked by financial cost to society + years lost from a normal lifespan. Then allocate government research spending accordingly.

    And everyone should realize that drug company research is almost never targeted at finding cures. There is no real money to be made in curing diseases. The real money is in producing "treatment" drugs that must be taken until the disease kills you.
  • #123
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    The problem is that fatalities is not the only criteria. Some diseases don't so much kill right away as maim and compromise quality of life...diabetes for instance. And how do you compare combating suicide which takes people very often while they are young...and prostate cance which may just shave a few years off at the end of life.
  • #122
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    If you think about it, curing a disease is bad for big pharma, and bad for researchers. Treatment pays the most, so that's what we'll get. Any cures will come from independent science geeks who don't really care about money. Too bad that's how it is. If cancer was cured tomorrow, and given freely to anyone who needed it, just think how many people would be out of a job by this weekend.
  • #108
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    I have lost one wife to breast cancer. I donate a lot to that. I choose where to donate and how much to donate. There is no reason in the world for me to do it any other way.
  • #97
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    Of course people are free to donate to whatever they want. If they want to drop million on the Stop Foot Fungus Foudation, that's their prerogative. Government funding, however, needs to be weighted where it does the most good for the most people and that would be towards the diseases that kill the most people. Often the most donations go the the groups with the largest and best PR campaigns and fundraising organizations, which also means a larger part of its donations go towards PR and fundraising leaving less of the actual funds to go to research. It does no one any good if they raise $1 trillion dollars, but it cost them $1 trillion to raise it.
  • #90
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    Looking at the graph for more than an instant, the only thing that is alarming is that suicide is high on the list and is getting NO funding.

    Heart disease, lung diseases and diabeties (some forms) are a lot of times manageable, treatable and preventable! We have a lot of information, medication, research and funding (from Pharm companies mostly) and we know that smoking, bad diet, lack of exercise and most of all stress (and lets not forget old age) are major contributors to these top three diseases. If we focused more on prevention and less on medication, maybe we could make that circle smaller.

    Graphs and empiracle data are usually way over simplified and leave out crucial bits of information. Don't believe the hype.

    Also, there is no such thing as “donating to the wrong cause”.
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